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  1. Yes. Yes, absolutely. I know you have a different illness (I have atypical Parkinson’s) but what you say is so true for me too. It’s all chronic illness, chronic suffering, and it can be so horribly hard to get up and keep going. The club that none of us — families included — wished to join.
    Your description of the sleepiness made me laugh a little though. Those meds! I’ve fallen asleep in the midst of conversations, then apologized profusely (“No really, you aren’t that boring! I swear!”) No easy answers to any of it, but I wish you many better days. And am impressed you accomplish as much as you do.

  2. Oh Alison. This could not have come at a better time for me. I have it, too, but never had it really explained to me — just that “you have hypothyroidism.” I wasn’t aware of all the symptoms, other than the basics. I’ve been asking myself why I am always so damn tired — I’m trying to do everything right! My blood sugar levels were affected, my cholesterol increased, and I have energy in fits and starts. God bless you for this letter — I feel better just knowing I am not crazy! Right there with you! Here I thought it was just menopause or “getting older.” If I hear one more doctor start every f***ing conversation with “As we get older, dear, we …….” I will not be responsible for my actions. Thank you. I will hold you in my thoughts as we navigate this together..

  3. Oh Alison, that sounds really grim! I can’t pass you the dooberry bit, but I hope you’ll accept my sympathy.
    My partner has had ME for more than 15 years now – a very different illness, but also ‘invisible’ and therefore easily dismissed by others (as ‘laziness’, particularly, but also hypochondria). I think it’s hard enough to have an illness like this without having to cope with the lack of understanding (even from me, sometimes!). So I wish you well with dealing with other people, and with finding the best possible treatment.

  4. My heart breaks for you, I , too, am in the club no one wished to join, but it is fibromyalgia, my symptoms are just like yours. So sorry to know you cope with this also. Gentle hugs.

    1. I was thinking the same thing. Fibromyalgia is do similar so I completely relate to how you feel and it’s not easy!

  5. I’ve a barely functioning thyroid, colitis, trigiminal neuralgia and osteoarthritis and recovering from skin cancer. Known for humour being gregarious but Oh the tiredness the false smile most times…I look after my grandsons three times a week and it’s tough !
    I don’t moan about it, I mask a lot but I cry when alone. I am empathetic my lovely. The invisible illnesses the worse to deal with. No one really sees.
    Huge Hugs. I have followed you from day one and think you’re amazing.

  6. it is so frustrating to deal with a chronic yet “invisible” health condition. you seem to approach it with a lot of humor which is great. I have chronic kidney stone issues that require a crazy diet and times when I am in pain or totally down for the count. I hope you aren’t down for long-it sounds like you have a good grip on taking a time out for health. thank you for sharing this part of your life with us and not just the awesome days. love and light to you <3

  7. Allyson, just take good care of yourself. I have overcome cancer twice as well as sepsis. I just go with the flow. On sucky days I hang out in the bedroom or on the sofa. It is okay. My fabulous husband looks after me.

  8. I so identify with this, Alison. My advice would be to forget the to-do list until you feel better. Your body is talking to you – give her what she needs today. We understand and will still be here when you feel better. Much love xx

  9. Oh Alison, you are describing my life too. I also have Hashimoto’s and have come to accept that I only have so many spoons. When I have run out of spoons for the day then I’m just completely done in. I hate that.I hate not being able to think clearly. I spent five minutes the other day trying to remember the word “recital.” It’s so hard to make other people understand why I can’t do things I used to do without being wiped out.

  10. Thank you for sharing. There are women I love that suffer from chronic fatigue from various issues. One of them shared the below with me and it’s now a regular point of reference for us – how many spoons are left? It’s a great communication tool for family.
    I would so like to make hard things easy again for them. I work to be mindful of the limitations the disease processes put upon them, trying to support and maximize experiences. Every new article sharing someone else’s story helps me to be a little ‘more’ for these women I love. Thank you.

  11. Thank you for this, A!ison. My energy has been better since I started a grain free diet several weeks ago, but I am still struck with days -like today – when all I want to do is lay in bed with my eyes closed. Its so frustrating to not have the energy to do projects that excite me; that yesterday I could work on easily, but today, inexplicably, are out of reach. I’m exhausted, I’m achy, I wonder how long it will last, I worry if there is another illness hiding in my body; but with your article & the comments below, I feel less alone! Hang in there, everyone!

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